Archive

Posts Tagged ‘Asbestos’

February FACTs

February 3, 2016, Washington D.C. –

Ahh Washington politics. If you missed the Senate Judiciary Hearing on the FACT Act, it’s available online. It is titled The Need for Transparency in the Asbestos Trusts (click the title to watch).

I find it particularly amusing, there is no hearing on The Need for the United States to Ban the Use/Import of Asbestos. Instead, Senators like Jeff Flake & Orrin Hatch, would rather misdirect Congress and the people of the United States to “transparency” in legal matters, than address the fact that a toxic substance has not been banned in our country. Flake and Hatch are doing NOTHING to stop the USE of asbestos. Instead they are pandering to a large group of businesses who don’t want to pay into the Trusts set up for dying patients, with terminal disease because asbestos laced products are still available.

Let’s cut through the bullshit. Had Congress banned companies and the military from using asbestos, or banned the use/importation of asbestos across the board, there would be fewer people trying to pull money from these scared Trusts. Had business owners been more interested in keeping their employees safe, than their pockets lined, this would be less of an issue now.

Where is the Transparency in corporate use of asbestos? Senator Blumenthal made an excellent point. Why isn’t there a map of it’s use? The people who used it? This so called “FACT Act” wants a list of victims, and medical & legal histories, and social security numbers – but heaven forbid there would be a list of who used and who continues to use asbestos and where.

I’m nearly 100% sure the republicans who have signed on to this bill have no connections to asbestosis or Mesothelioma. Not one of them understands how it is to be repeatedly misdiagnosed, to have no where to turn especially early on, any idea of the support groups out there or how much it will cost to go through life saving measures – that 9 times out of 10 – won’t save you. If they did, if they were part of this special group that no one wants to join, they would fight for the victims and not the companies who created this problem.

No one was watching, but I live tweeted during the hearing. I point out a few things I felt are very important to know going forward. No one responded, not from any office. Certainly not from Thom Tillis’ campaign, who I’m ashamed to admit is from the state I currently call home. After repeatedly asking him to oppose the FACT Act, not only has he signed on, but he felt it necessary to ask questions in support of the FACT Act, not to garner any new information.

I wish Congress Republics (and the few Democrats abstaining) would stop blaming the victims and fight for a real ban on asbestos. The subterfuge has got to stop.

 

Advertisements

“It’s Like Putting A Gun To Your Head”

Indianapolis, IN – A recycling plant fire in Indiana puts hundreds of people at risk. Great job by the TV station WTHR staff for their reporting and more importantly for hiring a company to find the real truth after being told something completely different!

Asbestos fibers highlighted by flashlight.

Asbestos fibers highlighted by flashlight.

Great job by the team who found a new family who clearly has no idea what asbestos can do to their health. This reporter and photographer illustrate beyond a shadow of a doubt the lack of knowledge of regular people. The expert they have is a sound-bite machine! Love this guy. Well done. Thanks Carrie Cline and unnamed photog!

click here to view the story on this station's page

click here to view the story on this station’s page

Categories: Uncategorized Tags: , ,

Season of Giving

If you are looking to give to a charity close to your heart or close to the heart of someone you care for, I urge you to think of me, of my father and of the millions of others who have been or will be touched by Mesothelioma.

In the next month and a half I am hoping to raise the final portion of my father’s fundraising goal of $100,000. I know it seems daunting, but I am only $2856.64 shy of meeting that final number. I know it can be done.

With your help we can continue his legacy, his passion, to find a cure. It is needed now more than ever.

On November 13th, 2012 ADAO released a statement and video confirming that workers in Houston, TX were exposed to asbestos while repairing the city’s water mains. These workers were not warned of the potential hazards of their job on that day back in 2011.

If only you knew the pain of watching someone die of this horrible, preventible disease. For those who don’t know, I am so happy for you. For those who do, I know your pain. The deterioration of the person you love, the withering away of a once strong & amazing individual, the hopes and dreams of the things they’ll never see again … can break even the toughest of hearts.

For those of you still reading, I’m sure you remember the New York City sky the day of the attack on September 11th, 2001. You can see the planes in the rewind of your mind, the people and the papers flying down to the earth. Do you also remember that crazy, greyish cloud people closest to the attack walked through, breathed in, and tread on? Asbestos was in so much of those structures that came tumbling down,  more than 1,000 tons of it was released into the world that day. Can you even imagine how the city’s 1st responders are doing now? I’ll tell you that not everyone is doing all that well. CNN reported a Bill was created offering 1st Responders federal medical coverage for 58 different types of cancer. CNN also reported the story of how a 9/11 Detective Dies After Battle With Lung Cancer.

It is absolutely staggering to think of how people are effected by asbestos and that it is not fully banned. It was once the ‘miracle mineral‘, but it’s effects have been far less than miraculous!

Again, I hope you will join me in giving to my father’s last charity, the Mesothelioma Foundation. Through the funding of research, trials and education there may be a cure. As my father used to write, Believe in Yourself, Believe in a Cure.

Symposium Schedule

‘South Florida Miles for Meso’ Sun Sentinel Article

January 26, 2012 1 comment

Courtesy the Sun Sentinel/Palm Beach edition –  with special thanks to photographer Gina Fontana (I’ll post the actual article when I have it scanned)

The third annual “South Florida Miles for Meso 8K & 2M Tribute Walk,” benefiting the Mesothelioma Applied Research Foundation, will take place on Feb. 12 at Spanish River Park located in Boca Raton.

Pompano Beach resident and avid runner, Larry Davis, who was diagnosed with mesothelioma in 2006, will host the race.

Each year nearly 3,000 people are diagnosed with mesothelioma, an aggressive cancer caused by exposure to asbestos fibers.

After a latency period of 10 to 50 years, the cancer invades the linings of the lungs, abdomen and heart.

There is currently no known cure for mesothelioma.

This year Davis will team up with the Runner’s Edge Foundation (REF) to help promote healthy living.

REF promotes running and physical fitness for people of all ages. The foundation also supports groups and organizations in pursuit of running and physical fitness through teams, programs, competitions and educational means.

“My stepmother passed away a few years ago from cancer after a very long and difficult battle. I was very close to her and seeing Larry in a difficult cancer battle is something close to me … while I can never truly understand, I can support his fight,” said REF creator, Tom Vladimir.

A post-race party will include an awards ceremony, food, beverages, bounce house and more. To register for the race, visit http://www.Active.com.

A pre-race mesothelioma symposium will take place on Feb. 11th at the Hilton Hotel Deerfield/Boca from 3 to 7 p.m. Attendees will have the opportunity to meet leading experts in mesothelioma cancer research.

For more information about the Mesothelioma Applied Research Foundation, visit http://www.curemeso.org.

(L-R) Ken Butalewicz, Susie Simms, John May and Courtney May, 11.------Special to the Sun-Sentinel, Photo by Gina Fontana

Some Good News In My Battle With Mesothelioma

Another major accomplishment in my battle with Peritoneal Mesothelioma Cancer …
On Tuesday the 11th I returned from the University of Maryland Greenbaum Cancer Center

the view from my room

where my main doctor is H Richard Alexander. Dr Alexander reviewed my MRI with the Radiology Chief and confirmed that the combination of Carboplatin and Alimta has actually shrunk the size of many of my abdominal tumors. I was about to blow off any further treatment using dangerous Chemo with it awful side effects. It has opened the door for further surgery and a possible clinical trial with Dr. Dipnarine Maharaj.

I hope you will join me, Dr Raja Flores, Chief of Surgery Mount Sinai NYC, Dr Alexander, Dr Dipnarine Maharaj Oncologist & Director of the South Florida Bone Marrow Transplant Institute, and others Feb 11 2012 at 3 PM at the Hilton Hotel Deerfield Beach to learn the latest . I will be there too. RSVP Larry Davis mesosurvivor@aol.com for your reservation. 80% already filled. Act now – no charge for the symposium. Find more information at www.actionagainstasbestos.com.

M4M Saturday Health Symposium

%d bloggers like this: