Archive

Archive for the ‘Victims of Meso’ Category

February FACTs

February 3, 2016, Washington D.C. –

Ahh Washington politics. If you missed the Senate Judiciary Hearing on the FACT Act, it’s available online. It is titled The Need for Transparency in the Asbestos Trusts (click the title to watch).

I find it particularly amusing, there is no hearing on The Need for the United States to Ban the Use/Import of Asbestos. Instead, Senators like Jeff Flake & Orrin Hatch, would rather misdirect Congress and the people of the United States to “transparency” in legal matters, than address the fact that a toxic substance has not been banned in our country. Flake and Hatch are doing NOTHING to stop the USE of asbestos. Instead they are pandering to a large group of businesses who don’t want to pay into the Trusts set up for dying patients, with terminal disease because asbestos laced products are still available.

Let’s cut through the bullshit. Had Congress banned companies and the military from using asbestos, or banned the use/importation of asbestos across the board, there would be fewer people trying to pull money from these scared Trusts. Had business owners been more interested in keeping their employees safe, than their pockets lined, this would be less of an issue now.

Where is the Transparency in corporate use of asbestos? Senator Blumenthal made an excellent point. Why isn’t there a map of it’s use? The people who used it? This so called “FACT Act” wants a list of victims, and medical & legal histories, and social security numbers – but heaven forbid there would be a list of who used and who continues to use asbestos and where.

I’m nearly 100% sure the republicans who have signed on to this bill have no connections to asbestosis or Mesothelioma. Not one of them understands how it is to be repeatedly misdiagnosed, to have no where to turn especially early on, any idea of the support groups out there or how much it will cost to go through life saving measures – that 9 times out of 10 – won’t save you. If they did, if they were part of this special group that no one wants to join, they would fight for the victims and not the companies who created this problem.

No one was watching, but I live tweeted during the hearing. I point out a few things I felt are very important to know going forward. No one responded, not from any office. Certainly not from Thom Tillis’ campaign, who I’m ashamed to admit is from the state I currently call home. After repeatedly asking him to oppose the FACT Act, not only has he signed on, but he felt it necessary to ask questions in support of the FACT Act, not to garner any new information.

I wish Congress Republics (and the few Democrats abstaining) would stop blaming the victims and fight for a real ban on asbestos. The subterfuge has got to stop.

 

Changes to the Meso Foundation Symposium

SymposiumInsideBanner

I’m well behind the updates to this year’s Meso Foundation Symposium. I ran into a huge road block in my personal life trying to make sense of a Meso related death and all that has happened since and I have clearly not been strong enough to keep up like I did when I was up keeping this site for my father.

A lot has changed, even in the last year, and things are changing within the Foundation and with the Symposium. But rest assured the most important things will absolutely be the same.

There will be an incredible outpouring of support and caring. People like Mary Hesdorffer will be there with amazing insight and availability (don’t get me wrong, she’ll be super busy, but somehow she defies the space-time continuum with personal conversations and help). The Meso Foundation team will put on another outstanding conference and the attendees will all have experiences to share. If you haven’t made plans and can, definitely go. You will find a support group who will help you every step of the way. And as I read earlier, ‘give yourself permission’ to miss something or cry or express yourself. I didn’t and it only hurts me now.

A few things to note this year … there are 2 events happening. 1st the International Symposium on Malignant Mesothelioma and 2nd the Mesothelioma Scientific Seminar. You will be able to see much of the event via their LIVE STREAM . It has moved from Vegas last year back to the DC area. The host hotel is the Hilton Alexandria Mark Center. Also as you may have seen it is much earlier in the year from the 2012 Symposium.

For more info check out the Meso Foundation website http://www.curemeso.org  and Like their Facebook page & find communities.

Mavis’ Story: Making a Change

Yet another heartbreaking story of an inspirational woman:

Mavis addresses Parliment

Mavis addresses Parliament: courtesy MN fb

From KentOnline by Jamie Bullen:

Dying wife Mavis Nye battles for change in law to speed up treatment for mesothelioma after husband worked with asbestos in Chatham Dockyard

A dying woman battling for a change in the law to speed up life-saving treatment has revealed washing her husband’s work clothes led to her deadly disease.

When doctors told Seasalter pensioner Mavis Nye she was suffering from mesothelioma she knew straight away it was the result of cleaning her husband’s clothes after returning from work at Chatham Dockyard.

The asbestos-related cancer was caused by shaking the dust-filled garments before breathing in lethal fibres which can cause cancerous cells to develop.

Her husband, Ray, worked for five years as a shipwright at the dockyard during the 1960s before he left the industry.

In 2009 she was given three months to live but the 72-year-old is fighting on spurred by calls for a new law to speed up urgent medical treatments.

In the past five years she has had chemotherapy at hospitals in London and Canterbury to prevent the cancer from growing, but there are no new treatments available after she began suffering allergic reactions.

Speaking at her home in Seasalter Lane, Mavis said she knew instantly her exposure to asbestos through washing clothes was the reason she had cancer.

She said: “I knew straight away. We thought Ray would get it because he’s lost all his mates he used to work with but the shock was it was me instead.

< READ FULL ARTICLE HERE >

On Tuesday, she traveled to Parliament with Lord Saatchi to launch a consultation on his medical innovations bill, introduced after the death of his wife from ovarian cancer in 2011.

She said: “History was made this week. The debate was blown wide open.

“With mesothelioma, it’s not an old man’s disease any more.”

Another Connecticut Man Diagnosed with Meso

Many of my piers are helping to spread the word of a Connecticut man who has been diagnosed with Mesothelioma. 33 year old Christian Olsen, his wife & two young children have been given news any family should fear.

Recently News 12 Connecticut ran a story and you can hear the sweet young wife’s voice tremble has she speaks of the pain in learning what the family now faces.

In the video the reporter mentions the cause is not asbestos. I don’t believe they mention what they think it is. I watched it again, but still missed it if they did.

I don’t know the family, but being a daughter who lived with her father for many years in Connecticut, and to watch him suffer from this horrible disease before dying in the summer of 2012, it strikes a familiar chord. My heart goes out to him & his family .tiny red heartIf you would like to help him please donate to his GoFundMe account.

Up for a Vote HR 982 – My letter went something like this:

It may not be perfect, and it’s a little on the late-ish side, I just hope it conveys my message.

Good morning Congressman,

My name is Courtney Davis and I spoke to AJ yesterday about urging you to vote NO on H.R. 982 (Furthering Asbestos Claims Transparency Act). I am new to your district and wanted to follow up. I also wanted to say that despite my somewhat disjointed thoughts on the phone yesterday, AJ was very nice and I felt as though he was interested in passing along my concerns.

My father died last year as a result of asbestos poisoning. The 6 years he suffered with this disease (Mesothelioma) were unbearable. At first (2nd & 3rd) he was misdiagnosed, he almost died because of a small incision to his colon, and then continued to fight bravely for 5 more years to get funding, & more information to victims, caregivers and law makers about the devastating effects of asbestos.

My concerns with House Res 982 (FACT Act) are similar to my concerns w/ the new NC voting regulations. Yes, there may be 1 person out there trying to derail the system- isn’t there always, but that does not outweigh a person’s civil liberties. Both of these would restrict good people from getting their voices heard and ultimately discriminatory!

It was awful watching my dad waste away as he could not eat real food for the last year of his life because of multiple tumors in his abdomen. He was a marathon runner, who could no longer exercise. And we would frequently have to clean a stint in his belly that would get clogged w/ bile because his organs were no longer functioning properly because of a man-made-cancer.

 I say man-made because although these giant businesses knew asbestos was harmful, they continued to use it! It was up for a ban decades ago, but the Bill was voted down. We still have asbestos in our everyday lives: siding, brake pads, insulation, etc. Corporations knew asbestos was deadly and yet the industry hid the real facts and continued to put people, like my dad, at risk. And there are huge bills associated w/ treatment and there is no cure. This Resolution will put social security numbers on a list on a public website, delay possible compensation and basically tell the nation that Big Business means more than the little guy making things happen – and dying for working hard.

Thank you for your time. I sincerely look forward to living in your district!

For more information on the effects of asbestos go to:

https://actionagainstasbestos.wordpress.com/larry-davis/

Sincerely,

Courtney Davis

To find your Rep: http://www.house.gov also see ADAO for a template and more info: http://www.asbestosdiseaseawareness.org/archives/24133

 

 

 

Ed Lauter dies at age 74 – courtesy AP

LOS ANGELES — Veteran character actor Ed Lauter, whose long, angular face and stern bearing made him an instantly recognizable figure in scores of movies and TV shows during a career that stretched across five decades, died Wednesday. He was 74.

Lauter died of mesothelioma, a rare form of cancer most commonly caused by asbestos exposure, said his publicist, Edward Lozzi.

Whether he was an irascible authority figure, a brutal thug or a conniving con man, Lauter’s presence made him all but impossible to miss in any film he was in. That was so even on those occasions when he was playing a character more bumbling than menacing, although menacing was clearly his forte.

He was the brutal prison guard who was Burt Reynolds’ nemesis in the 1974 comedy-drama “The Longest Yard” and the sleazy gas station attendant in Alfred Hitchcock’s last film, “The Family Plot.” In “Death Wish 3,” he was the violent cop who teams with Charles Bronson’s vigilante to rid New York City’s streets of criminals, not by incarcerating them but by killing them.

More recently he was the butler to Berenice Bejo’s French ingenue in the 2011 Oscar-winning film “The Artist.”

Lauter described himself in a 2010 interview with Cinema Shock magazine as a “turn” actor, someone who shows up at some point in the film and suddenly turns the plot in a different direction.

He credited the cast of real-life characters he grew up observing in his native Long Beach, N.Y., as inspiring many of the characters he would go on to portray.

He laughed at being someone frequently recognized in public for his roles.

“But sometimes people don’t know my name,” he said. “They’ll say, ‘Oh, yeah! There’s that guy! You were in … you were in … ”

He was in “Trouble With the Curve” in 2011 with Clint Eastwood and in “Born on the Fourth of July” with Tom Cruise. He was also in “The New Centurions” with George C. Scott and in “My Blue Heaven,” ”Revenge of the Nerds 2″ and “Not Another Teenage Movie,” among many other films.

TV appearances included “The Office,” ”ER,” ”Murder, She Wrote” and “The Rockford Files.”

Among his favorite roles, he said in 2010, was “The Longest Yard.”

He recalled that director Robert Aldrich told him he didn’t have to read for the part but would have to accompany Aldrich to a nearby park so the director could ensure that he could throw a football like a quarterback would. When he hit former NFL receiver Pat Studstill, who was a stuntman in the movie, right in his jersey number with the first pass, Lauter said Aldrich told him he had the job.

Lauter, who continued to work until a few months ago, had completed roles in several films still to be released.

He is survived his wife, Mia, and four children.

A Wonder(ful) Woman

Janelle Bedel

Janelle Bedel

Rushville, IN June 19, 2013 –

Last night I heard from a dear friend (and another father-lost-to-Meso amazing lady) that Janelle Bedel had lost her battle with Mesothelioma. (To read more about Janelle’s battle see Mesothelioma & Me)

It is an incredibly sad day.

I’ve had my own demons in the year since my father died. I’ve been wrestling with how he left his estate, the loose ends that were left untied by his death, and what it says about our relationship. Father’s Day came and went with a couple of friends who helped note the day with kind wishes, but no conversation with my dad … the only the reminder that it was the last day I saw him alive, one year ago.

The last few weeks have brought on the deaths of some other incredible Meso warriors and it all seems to much to bear. Today certainly marks the worst of it. It’s unbelievable to think another family is torn apart by a man made disease. A young, vibrant woman taken from her family way too soon.

jenellej2

Janelle’s Journey 2: In Memory of Larry Davis

Last October Janelle and her husband orchestrated the “Miles for Meso” bike run in honor of my father Larry Davis. The proceeds went to help the Meso Foundation’s immunotherapy research grant in his name. This gesture was indicative of this Wonder Woman. Janelle continued to fight to educate people about the deadly effects of asbestos, even from her hospital bed. When arrangements were made for hospice, the fight grew in her and she did more to inform people about this cancer than anyone I’ve ever seen. Rushville Indiana now has a day to celebrate Janelle’s life, the Bedel’s have a key to the city, and most of the greater IN and OH area must’ve seen the coverage of the Facebook movement adding the Wonder Woman symbol to everything in her honor. Hundreds of people have been introduced to Janelle, her kindness, her energy and her devotion to getting the word out about what politicians are doing to all of us by not eliminating all uses of asbestos.

Left to right: Linda, Janelle & Larry and the 3rd Annual South Florida Miles for Meso event.

Left to right: Linda, Janelle & Larry and the 3rd Annual South Florida Miles for Meso event.

I really don’t know Janelle all that well. She and my dad would talk and she always kept tabs on his progress. I feel like I know her because of all that she did in honor of my dad, but in all honesty we only had a couple of conversations. I watched her from afar as she was adored by others in the Meso community, loved by family in touching FB posts and awarded in all sorts of ways by ADAO, the Rushville Mayor, Senators and those of us who just had the simple opportunity to watch her brush into our lives like a super hero. I would’ve loved to have known her better. I think we all would be lucky to have this Wonder Woman in our lives a long while longer … if only. ❤

Wishing you love and peace on your next journey Janelle. Thank you for including me and my dad in the last one.

I’m not sure yet where to make donations officially, but you can always go to the Meso Foundation’s CureMeso.org site and give in Janelle Bedel’s name or on the Asbestos Disease Awareness Organization’s donation page.

%d bloggers like this: